Deaf Carer

 Last week was a week of appointments, one a day for four out of five days.  This meant that I didn't have chance to catch up on the laundry, get the general cleaning done or anything else for that matter. It started off reasonably okay but I soon hit tiredness followed by exhaustion, it takes around 40min to an hour to get my caree ready and into the car etc never mind out the other end so it's always time consuming.   It's the having to listen and hear with masks that has excarbated the exhaustion in the last week, just to make that worse I've hit the over tired and thus can't sleep part of exhausted.   I just really need some down time and a chance for my body to recover I'm just unsure on how to achieve it when I'm so far behind.  It just all feels so very unachievable. I don't know if it's just me who finds this difficult and thus a fault of mine or if it's deaf people in general or carers in general or maybe a combination of both I don'...

 I'm rather late with this post and to be honest I've had a different one in mind for several weeks I just haven't had the time to write it.  As any carer will atest there is always something that comes up and prevents you from doing the things you want to do but here I am better late than never as the saying goes. Remembrance in the UK is about wearing Poppies, Observing a two minute silence and think about the Fallen and Injured armed forces who have fought in wars to give us our freedom.  War Memorials, the act of remembrance and Poppies all originated at least a hundred years ago.  It was an opportunity to remember those who died on the battle fields of WW1/The Great War/The War to end all Wars and who returned unable to work, fend for themselves physically due to injury or who suffered mentally from the horrors of war.  As time went on WW2 was included in the act of Rembrance, there are few left who remember WW1 but there are plenty left who remember WW2, w...

 This entry is inspired by a new hashtag on twitter #WhatMakesACarerCry, every Thursday carers tweet what upsets them using the hash tag.  I decided that I was going to go with Self Care.   As far as I'm concerned this is the worse phrase on the planet.  If I had the time, money and the thing I wanted to do was legal there is no reason why I can't do something for myself, I don't need a label or reason for doing it other than I enjoy it.  I shouldn't have to justify it to someone else either so as far as I'm concerned if self care involves, reading, craft, walking, photography whatever, I don't need a label for it I do it because I enjoy it.  For this reason I see no reason whatosever why the term Self Care was ever invented.   As a deaf person I can see how a few things may come under self care but in a different meaning to what I've seen it used as recently, I'm defining it as care for my physical health:  Rest: If I'm lipreading or tr...

 You may think you have good intentions and you may not mean any malice but saying any of the following will feel like malice when your on the recieving end. Have a Rest; Yes because it's that simple I'll just go to bed it won't matter if medication is late or missed or someones sat in faeces/urine for three hours won't hurt it's not as if knowingly neglecting someone so they come to harm is a criminal offense oh wait yes it is...oh what a shame turns out I can't just go and have a rest after all.  Suggesting this shows lack of understanding, empathy, it's patronising because you seem to think I haven't thought of that and insulting that you think I would knowingly cause harm to someone. Have a day or trip out; Paying for the extra care neeeded at £30 an hour are you? No that's a shame because you earn a living wage as required by law unfortunately that doesn't apply to carers we earn pence per hour and free respite doesn't cover those who re...

 I was thinking about the things I really wish someone particularly a friend would say to me.  Admittidly once your a carer friends are few and far between but there are still dreams and those include: I'll hold the fort you shower; we don't need hours just twenty minutes to feel the hot water on our skin and wash our hair.  Ten minutes would do if your pushed for time, we don't need time to shave legs or deep condition our hair because nobody will notice if we do we just want to feel fresh and clean. Talk to us; we know we have nothing of interest to say ourselves but that doesn't mean that we don't want to hear what you are doing, just be careful not to rub it in and make us feel bad because your off on your 4th holiday of the year and we've yet to find the respite let alone energy to even go into the garden Offer to do chores; Don't worry 99% of the time we will tell you it's fine and do it ourselves but we may take you up on it if we are really stru...

 Today involved phone calls and as a lipreader I'm now exhausted.  I also feel guilty I've not had any exercise in two weeks, a combination of being so tired I was crying at absolutely everything but also due to an asthma attack.  I got home at the weekend and a neighbour had a bonfire.  I was struggling as soonas I got out the car but only got as far as the front door before collapsing I just couldn't walk any further. I crawled inside and sat inside the door for an hour with an inahler before dragging myself up the stairs to close the windows.  It took all night and then most of Sunday to not need an inhaler regularly.  Nagging in my mind is you should have sought medical help but I've seen all the warnings, 111 are overwhelmed with calls and 999 can't no longer cope and are not physically able to respond to calls anymore...so what was the point? I'd only be adding to their pain and that seemd cruel.  It also scared me because what if I called and th...

 Four walls, that's all I'm allowed to see, or that's all the professionals encourage me to see. Don't leave them alone...why? I have no idea why...my caree has a better memory than I do, can walk with a walking frame easy enoguh, remembers to take her own medication, granted struggles to get it out the packaging but if one dose is put in a sistema salad dressing tub she can do it herself. I don't understand this constant pressure to never leave her alone?  I also don't understand the pressure to get her to sleep for two hours in the afternoon, I've spent 14 LONG months trying to convince everyone it's not necessary for me to do 22 hours a day, if she stays awake in the afternoon she actually sleeps at night.   I can't quite decide if they are trying to kill me, have absolutely no concept of what caring means {although quite frankly as nurses and drs they darn well should} or if they are just being certain of job security by putting enough pressure o...